Posts Tagged ‘support’

Support Groups

CHARGE Syndrome Foundation Parent to Parent Resources If you are interested in finding someone in your area please contact the foundation at 800-442-7604 or by sending an email to info@chargesyndrome.org for a list of families. CHARGE Family Support Groups – US-based CHARGE Syndrome Foundation Facebook Group http://www.facebook.com/groups/chargesyndrome CHARGE Syndrome Foundation Facebook Page https://www.facebook.com/chargesyndromefoundation/ Texas CHARGE Group […]

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International Groups & Organizations

Sense – this UK-based group is the leading national charity that supports and campaigns for children and adults who are deafblind. Association CHARGE – this is a French support group, formed in 1996 by parents. CHARGE Syndrome Association of Australasia Ltd – The CHARGE Syndrome Association of Australasia is a not-for-profit organisation committed to improving […]

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Charge It For CHARGE

  “Charge It for CHARGE” is the primary online fundraising campaign of the CHARGE Syndrome Foundation. Become a fundraiser or donor. You can use e-mail and social media to raise funds for the Foundation. Your support helps fund research, outreach, and biennial international conferences. You can make a difference! Click here for a quick tutorial […]

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Our Impact

    View our 2020 Impact Report to get an overview of some of our accomplishments and a look at our plans for the future.                 We remain committed to ensuring that the maximum amount of dollars received is spent directly on research, awareness, and programs to support families […]

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Donate & More Ways to Give

More than 90% of every dollar donated goes directly to support research, outreach, conferences, and our other programs. The CHARGE Syndrome Foundation is a registered 501 (c)(3) charitable organization. Your contribution is tax deductible to the full extent allowed by law. We make donating as easy as possible. You can donate online or mail your donation […]

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Get Support

The CHARGE Syndrome Foundation has many ways to offer support and resources to parents, professionals, and people with CHARGE syndrome. Our local, national, and international partners provide an array of services to help the CHARGE syndrome community. The CHARGE Syndrome Foundation, along with our partners, can assist with finding services and programs such as: new […]

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New Diagnosis

Welcome! You may be feeling shocked, afraid, and confused, but you’re not alone. As parents of individuals with CHARGE, we’ve all been there and we can help you make sense of the challenges your son, daughter, family member, or friend might face.  We invite you to take these first steps as you begin to learn […]

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For Families

You found this page because you need information about CHARGE syndrome. You might have a new baby, a toddler or an older child who has just been diagnosed with CHARGE; you might be an adult who is beginning to realize that your constellation of vision, hearing, and health issues might be CHARGE syndrome; or you […]

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