View our 2021 Impact Report to get an overview of some of our accomplishments and a look at our plans for the future. We remain committed to ensuring that the maximum amount of dollars received is spent directly on research, awareness, and programs to support families and […]
Executive Director Lisa Cunningham Kansas Outreach and Engagement Manager Lourdes E. Quintana Baez, MS, ITDS Florida Communications Specialist Torrie Rathjen Metuchen, New Jersey
The CHARGE Syndrome Foundation has many ways to offer support and resources to parents, professionals, and people with CHARGE syndrome. Our local, national, and international partners provide an array of services to help the CHARGE syndrome community. The CHARGE Syndrome Foundation, along with our partners, can assist with finding services and programs such as: new […]
Welcome! You may be feeling shocked, afraid, and confused, but you’re not alone. As parents of individuals with CHARGE, we’ve all been there and we can help you make sense of the challenges your son, daughter, family member, or friend might face. We invite you to take these first steps as you begin to learn […]
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