The CHARGE Syndrome Clinical Database Project (CSCDP) is an internet web-based questionnaire designed to collect clinical data on individuals with CHARGE syndrome (CS). Our aims are to: collect information on people with CS of all ages from all over the world, use the collected data to understand more about CS and how it affects different […]
The Foundation has asked families and professionals to recommend physicians or therapists who have been helpful to your family, who are knowledgeable about CHARGE syndrome or have been willing to learn and go that extra mile. While the Foundation does not endorse or recommend any specific providers, we are happy to share the information we […]
The CHARGE Syndrome Clinical Database Project (CSCDP) is an internet-based questionnaire designed to collect clinical data on individuals with CHARGE syndrome (CS). Our aims are to: collect information on people with CS of all ages from all over the world, use the collected data to understand more about CS and how it affects different […]
CHARGE is an incredibly complex syndrome that involves numerous medical, educational, developmental, social and behavioral issues. As a result, there are many different ways to help the Foundation and individuals with CHARGE address these challenges. The information we obtain from professionals and families can be passed onto others by becoming a state liaison, making provider […]
Parents of children ages 3 to 12 years with and without CHARGE Syndrome needed for Research Study. This study will examine associations between the environment and parents perceived motor and teaching competence in children with CHARGE Syndrome To read more about this study: click here. For more information and the link to participate, please contact […]
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