An easy way to help the Foundation is through your online shopping. Choose the CHARGE Syndrome Foundation as your charity of choice on the following sites: AmazonSmile, Goodshop, and iGive.com. The Foundation will receive a percentage of your purchase as a donation. You can shop and donate to the Foundation at the same time! […]
View or download our impact report [PDF-2.59MB] to get an overview of some of our accomplishments and a look at our plans for the future. We remain committed to ensuring that the maximum amount of dollars received is spent directly on research, awareness, and programs […]
The mission of the CHARGE Syndrome Foundation: We lead and partner to improve the lives of people with CHARGE syndrome locally, nationally, and internationally through outreach, education, and research. Provide a broad network of support to individuals, families and professionals Engage in knowledge acquisition, development and dissemination Promote innovative scientific and clinical advancements Champion the […]
Meet our two employees, Jackie Alshawabkeh and Sheri Stanger. Director of Outreach Sheri Stanger is our Director of Outreach and spends many hours supporting families in a variety of ways. Development & Database Manager Jackie Alshawabkeh is our Development & Database Manager and assists with many different Foundation projects.
Renew or become a member now! Thank you for helping turn the mission and vision of the Foundation into reality! If you prefer to mail a check for your membership, the form below may be used. The membership levels are as follows: Annual Membership (current calendar year) – $30 Lifetime Silver Membership – $250 Lifetime […]
Some fantastic benefits of membership to the Foundation include: Registration discount at conference for Lifetime members Eligible for the Ethan Wolfe Recreational Assistance Program Priority signup for sibshops at conference Eligible for conference scholarship Priority access to webinars Lifetime members receive membership pins Notification of research studies
Products Shop for CHARGE awareness products including jewelry, decals, luggage tags and more. These items make great gifts for all members of your family and friends. Each purchase allows the CHARGE Syndrome Foundation to continue to provide information, tools, and resources to improve lives of individuals with CHARGE. 100% of the profits support the Foundation. […]
Sign up for the CHARGE Syndrome Foundation eNews to receive our quarterly newsletter as well as e-mail announcements highlighting upcoming events, research, webinars, opportunities to assist the Foundation, conference information, and more! To stay informed, sign up for our eNews.
Members are the lifeblood of the Foundation. By working together, we can create a better world for all individuals with CHARGE syndrome. Whether an annual member or one of the four-lifetime levels, every membership shows that YOU support the largest organization dedicated solely to CHARGE syndrome. Becoming a member provides your voice to increase awareness, […]
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We hope you are enjoying the new website. It is our goal to make navigation and availability of resources as user-friendly as possible. If you need help finding a resource or have a suggestion, please let us know at info@chargesyndrome.org.