Help spread awareness and support the Foundation by shopping our CHARGE Syndrome Awareness Store! Another easy way to help the Foundation is through your online shopping. Choose the CHARGE Syndrome Foundation as your charity of choice on the following sites and the Foundation will receive a percentage of your purchase as a donation. You can […]
Read our full 2024 Impact Report to get an overview of some of our accomplishments and a look at our plans for the future. We remain committed to ensuring that the maximum amount of dollars received is spent directly on research, awareness, and programs to support families and individuals with CHARGE. We are proud to say […]
The mission of the CHARGE Syndrome Foundation: We lead and partner to improve the lives of people with CHARGE syndrome locally, nationally, and internationally through outreach, education, and research. Provide a broad network of support to individuals, families and professionals Engage in knowledge acquisition, development and dissemination Promote innovative scientific and clinical advancements Champion the […]
Executive Director Lisa Cunningham Kansas Outreach and Engagement Manager Lourdes E. Quintana Baez, MS, ITDS Florida Marketing and Communications Manager Torrie Rathjen New Jersey
Some fantastic benefits of membership to the Foundation include: Registration discount at Conference for Lifetime members Eligible for the Ethan Wolfe Recreational Assistance Program Priority signup for sibshops at Conference Eligible for Conference scholarship Priority access to webinars Lifetime members receive membership pins Notification of research studies
*Shipping available to U.S. only
Sign up for the CHARGE Syndrome Foundation eNews to receive our quarterly newsletter as well as e-mail announcements highlighting upcoming events, research, webinars, opportunities to assist the Foundation, conference information, and more! To stay informed, sign up for our eNews.
Be a part of something great! Becoming a member is easy & impactful. Members are the lifeblood of the Foundation. By working together, we can create a better world for all individuals with CHARGE syndrome. Whether an annual member or one of the four-lifetime levels (see levels below), every membership shows […]
The CHARGE Syndrome Foundation has many ways to offer support and resources to parents, professionals, and people with CHARGE syndrome. Our local, national, and international partners provide an array of services to help the CHARGE syndrome community. The CHARGE Syndrome Foundation, along with our partners, can assist with finding services and programs such as: new […]
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