It has been a landmark year for the CHARGE Syndrome Foundation. In fact, we broke all-time Foundation records in conference scholarships and program awards this year, reaching more families than ever before and expanding our impact in ways we are incredibly proud of. One of the year’s defining moments was hosting the 16th International CHARGE […]
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The mission of the CHARGE Syndrome Foundation: We lead and partner to improve the lives of people with CHARGE syndrome locally, nationally, and internationally through outreach, education, and research. Provide a broad network of support to individuals, families and professionals Engage in knowledge acquisition, development and dissemination Promote innovative scientific and clinical advancements Champion the […]
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Executive Director Lisa Cunningham Kansas Outreach and Engagement Manager Lourdes E. Quintana Baez, MS, ITDS Florida Marketing and Communications Manager Torrie Rathjen New Jersey Finance and Administrative Specialist Becky Read Kansas
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Some fantastic benefits of membership to the Foundation include: Registration discount at Conference for Lifetime members Ability to vote in board elections and participate in member surveys, giving you a voice in the Foundation’s future direction Priority signup for sibshops at Conference Eligible for Conference scholarship Priority access to webinars Lifetime members receive membership pins […]
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Sign up for the CHARGE Syndrome Foundation eNews to receive our quarterly newsletter as well as e-mail announcements highlighting upcoming events, research, webinars, opportunities to assist the Foundation, conference information, and more! To stay informed, sign up for our eNews.
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Be a part of something great! Becoming a member is easy & impactful. Members are the lifeblood of the Foundation. By working together, we can create a better world for all individuals with CHARGE syndrome. Whether an annual member or one of the four-lifetime levels (see levels below), every membership shows […]
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The CHARGE Syndrome Foundation has many ways to offer support and resources to parents, professionals, and people with CHARGE syndrome. Our local, national, and international partners provide an array of services to help the CHARGE syndrome community. The CHARGE Syndrome Foundation, along with our partners, can assist with finding services and programs such as: new […]
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