A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Profiles in CHARGE

Get to know our CHARGE community and read inspiring stories of overcoming feeding challenges to stories honoring caregivers. Meet individuals with CHARGE and share in the stories of their hobbies and hopes. Welcome to Profiles in CHARGE.

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Profiles Archive


Volunteer Spotlight

Mike Vyn and his family have been involved with the CHARGE Syndrome Foundation since their son Gabe, who is now six, was diagnosed with CHARGE several days after he was born.

“As soon as the CHARGE diagnosis was confirmed, I began to receive information from the CHARGE Syndrome Foundation,” Mike says. “Their info and research are things I continue to use today, so the Foundation’s work is very important and very valuable for my son and my family.”

Read more about Mike

Spotlight Archive