The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.
Conference Registration is Open!
The 2013 online conference registration headquarters is now open. There are lots of information links about what is happening at conference as well as a to-do list that will take you through the registration process and ensure you are all set to join us for a fabulous conference in Arizona!
Donations & Fundraising
Help the Foundation by making a tax-deductible contribution to the CHARGE Syndrome Foundation. Click the donate online button below to donate using a major credit card. If you prefer to mail your contribution, use this form.
Or consider holding a fundraiser to raise money for the Foundation. Click here for a list of several ways to put the FUN in fundraising.
Provider Database
We are developing a provider list of specialists and are seeking information on physicians, therapists and other service providers who have been helpful to your family and are knowledgeable about CHARGE syndrome.
Please submit provider information using the link below. Thank you!
Pilot Grants
The Foundation is now receiving applications for 2013-2014 pilot grants.The purpose of these grants is to promote new biomedical research into the etiology, genetic and molecular mechanisms and treatment of CHARGE syndrome. Proposals may be in any area of basic, clinical, translational or epidemiological research.
National Deaf-Blind Equipment Distribution Program
The goal of the NDBEDP is to ensure everyone with combined vision & hearing loss has access to telecommunication tools & training. The program provides outreach, assessment, technology and training for free to those who meet federal eligibility guildelines. Check it out!
CHARGE Syndrome FAQ
Who, what, when, where, why...some of the most commonly asked questions about CHARGE syndrome are answered in this FAQ document. You can also view a CHARGE syndrome fact sheet.
The CHARGE Syndrome Foundation is a 501(c)(3) charitable organization. All donations are tax deductible to the extent allowed by law. Your donations help fund research, publications, educational programs, the biennial conference and family outreach. For more information, please contact our fundraising committee.
Foundation Fundraiser
Learn more about our special Charge It for CHARGE Fundraiser. You can donate or become a fundraiser to help!
11th International CHARGE Syndrome Conference -
July 25-28, 2013
Scottsdale, Arizona
141 Middle Neck Rd · Sands Point, NY 11050 · 800-442-7604 · info@chargesyndrome.org
CHARGE Syndrome Foundation · Hosting by Firm Support · Website by Kinetic
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