The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.
2012 Annual Membership Campaign
The Foundation is beginning its annual membership campaign. Our members are the lifeblood of our organization. Please join or renew your membership so we can continue to be the resource where people turn first.
Our Latest Newsletter
Spring has sprung and our first issue of CHARGE Accounts for 2012 is in full bloom. In this issue, we talk about issues that relate to the quality of life for individuals with CHARGE, such as: education, awareness, studies, events, databases, resources, fundraising and more. It's a jam-packed issue we hope you'll enjoy!
Provider Database
We are developing a provider list of specialists and are seeking information on physicians, therapists and other service providers who have been helpful to your family and are knowledgeable about CHARGE syndrome.
Pain Issues in CHARGE
The first CHARGE Syndrome Foundation webinar was held February 12/12 with Dr. Tim Hartshorne and Dr. Kasee Stratton. If you missed it, you can click the webinar recording link below to view it. Captions are available here to accompany the recording.
Make A Donation
Help the Foundation by making a tax-deductible contribution to the CHARGE Syndrome Foundation. Click the donate online button below to donate using a major credit card. If you prefer to mail your contribution, use this form.
CHARGE Syndrome FAQ
Who, what, when, where, why...some of the most commonly asked questions about CHARGE syndrome are answered in this FAQ document. You can also view a CHARGE syndrome fact sheet.
The CHARGE Syndrome Foundation is a 501(c)(3) charitable organization. All donations are tax deductible to the extent allowed by law. Your donations help fund research, publications, educational programs, the biennial conference and family outreach. For more information, please contact our fundraising committee.
Foundation Fundraiser
Learn more about our special Charge It for CHARGE Fundraiser. You can donate or become a fundraiser to help!
11th International CHARGE Syndrome Conference -
July 25-28, 2013
Scottsdale, Arizona
New CHARGE Store
You can now buy CHARGE merchandise and create awareness. The Foundation also receives 25% of the purchase price. Wear your CHARGE Syndrome Foundation clothing with pride!
141 Middle Neck Rd · Sands Point, NY 11050 · 800-442-7604 · info@chargesyndrome.org
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