The CHARGE Syndrome Foundation is dedicated to promoting high quality clinical and scientific research into the cause and treatment of CHARGE syndrome. We have come a long way over the past couple of years, but know there is way more to be done. CHARGE Syndrome Foundation Scientific and Clinical Research Grant Program Thanks to the […]
HOW TO PARTICIPATE IN CHARGE SYNDROME RESEARCH CHARGE research could not take place without the participation of the families. There are many ways you can help. At any given time, there are many studies underway all over the world to help further understand many aspects of CHARGE and CHD7. Studies range from DNA analysis to […]
2026 Barriers to Physical Activity for Children With CHARGE Syndrome a Descriptive Study Caregiving for Children and Youth With CHARGE Syndrome Impact of Family Caregiver Quality of Life and Coping Strategies Independence Inclusion and Uncertainty Voices of Caregivers of Youth with CHARGE Syndrome on Assistive Technology and Virtual Reality Out of the Woods Perspectives of […]
CHARGE syndrome and CHD7 research help us understand the syndrome, its features and management. Research Opportunities for Families and Individuals with CHARGE Want to participate in research? Find research opportunities for families and individuals with CHARGE and check back often to see if new studies have been posted. Foundation Supported Research Looking for grant opportunities? […]
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