The CHARGE Syndrome Clinical Database Project (CSCDP) is an internet-based questionnaire designed to collect clinical data on individuals with CHARGE syndrome (CS). Our aims are to: collect information on people with CS of all ages from all over the world, use the collected data to understand more about CS and how it affects different […]
The Scientific Advisory Board (SAB) was established in 2011 to serve as a resource to assist in the identification, funding, and development of scientific research projects. The formation of this new advisory board demonstrates the Foundation’s commitment to investing in high-quality scientific research. The SAB consist of leading scientists and medical doctors with extensive research […]
The CHARGE Syndrome Foundation is dedicated to promoting high quality clinical and scientific research into the cause and treatment of CHARGE syndrome. We have come a long way over the past couple of years, but know there is way more to be done. CHARGE Syndrome Foundation Scientific Research Grant Program The CHARGE Syndrome Foundation, Inc. […]
Parents of children ages 3 to 12 years with and without CHARGE Syndrome needed for Research Study. This study will examine associations between the environment and parents perceived motor and teaching competence in children with CHARGE Syndrome To read more about this study: click here. For more information and the link to participate, please contact […]
To learn about the Institute on Movement Studies for Individuals with Visual Impairment or Deafblindness connection to the Foundation watch this video. Canadian scientists in the laboratory of Dr. Nicolas Pilon have found a new gene, Fam172a, that might be involved in CHARGE syndrome. The research “Dysregulation of cotranscriptional […]
CHARGE research and CHD7 research help us understand the syndrome, its features and management. Want to participate in research? See Opportunities for Families and start with CSCDP. Check back often to see if new studies have been posted. Looking for grant opportunities? See the RFP information in Foundation Supported Research. Are you a young professional […]
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