Posts Tagged ‘project’

Clinical Database Project

The CHARGE Syndrome Clinical Database Project (CSCDP) is an internet web-based questionnaire designed to collect clinical data on individuals with CHARGE syndrome (CS). Our aims are to: collect information on people with CS of all ages from all over the world, use the collected data to understand more about CS and how it affects different […]

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Become a State Liaison

State Specific Resources The State Family Liaison Project is a model of collaboration to improve the Foundation’s outreach to both families and professionals at the national level.  The position will be used to build relationships, network, collaborate and disseminate information. The primary function of a State Family Liaison is to: Share the latest CHARGE resources […]

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