The impact of deaf-blindness and sensory deficits on individuals with genetic syndromes and strategies to aid families in obtaining appropriate services Presented by a team led by Meg Hefner at the 2017 National Society of Genetic Counselors annual meeting in Columbus, OH September 14, 2017 Genetic counselors are familiar with genetic disorders involving sensory deficits, […]
The Foundation gets many requests from a variety of professionals asking for information about CHARGE syndrome. Many of those requests come from therapists and educators (teachers, clinicians, specialty staff) who may have a student in their classroom or they have a new therapy referral for a client with CHARGE syndrome. They want to know many […]
Children with CHARGE syndrome present as unique individuals who, despite having a myriad of health and developmental challenges, are resilient and interesting and surprising in their zest for life and willingness to join in all that is offered to them. However, their parents and specialists may note specific behaviors that can interfere with their educational and […]
If you are an educator or therapist with a student/client with CHARGE syndrome, this information is for you. This packet was developed to provide a brief introduction to the complex world of CHARGE and some strategies to consider in education and therapeutic settings. Read the ASHA Leader reprint for an overview of genetics, clinical diagnosis, ears […]
Welcome to the “For Professionals” page of the CHARGE Syndrome Foundation website. You are here because you have a new or long-standing interest in CHARGE syndrome. We hope we can be of assistance. This page is designed to provide professionals with specific medical, psychological, behavioral, and educational information related to CHARGE. There is also information about the Sandra […]
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