Posts Tagged ‘orlando’

The Shikoras Take CHARGE in Orlando

The Shikora Family: Taking CHARGE in Orlando. I have to begin this by saying I can’t believe we waited 12 years to go to our first CHARGE Syndrome Conference. It was one of the most incredible experiences we have had since Hannah was born. Coincidentally her 12 th birthday fell during the week of the […]

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Conferences

The past 9 months have presented a unique set of challenges for so many in our extended CHARGE family. As we moved closer to the hotel’s deadline to cancel the 15th International CHARGE Syndrome conference, “The Grand Adventure” in Phoenix, AZ, without significant financial penalties, we struggled with “making the right decision”: balancing the desire […]

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