The Shikora Family: Taking CHARGE in Orlando. I have to begin this by saying I can’t believe we waited 12 years to go to our first CHARGE Syndrome Conference. It was one of the most incredible experiences we have had since Hannah was born. Coincidentally her 12 th birthday fell during the week of the […]
The 15th International CHARGE Syndrome Conference will be held at Rosen Shingle Creek, Orlando, FL, July 20-23, 2023. Join us in Orlando, Florida for the largest worldwide gathering of individuals with CHARGE, their families, professionals and experts on CHARGE syndrome. Past attendees have compared Conference to a family reunion, a life-changing experience, and equated it […]
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