CHARGE Syndrome Education Professional Packet In response to the most common requests for information from educators and therapists, this packet was developed as a supplement to the Management Manual for Parents. The packet may be downloaded in sections or in full. Education Professional Packet CHARGE Syndrome: A Management Manual for Parents Over 200 pages of […]
(c2002–Edited by Meg Hefner, M.S. & Sandra Davenport, M.D.) The CHARGE Syndrome Management Manual for Parents breaks down CHARGE into some of its components. The Medical sections are by body system. Each topic includes a For Physicians and For Parents section. “For Physicians” lists the features of CHARGE within that specialty. “For Parents” reviews the […]
The typical child with CHARGE syndrome is followed by an average of 17 different medical specialists and will have more than a dozen surgical procedures before he or she is 10 years old. Ideally, individuals with CHARGE would have a care coordinator to help coordinate and manage medical care. If this is available, take advantage […]
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