The CHARGE Syndrome Foundation was built by volunteers — parents, professionals, and community members who dedicate their time to supporting families, organizing biennial conferences, raising awareness, and much more. While we now have a small team of paid staff who help carry out the Foundation’s important work, the spirit of these awards remains focused on recognizing […]
It all began in 1982 with a Deaf-Blind Project in the Division of Genetics, Department of Child Health, University of Missouri, Columbia. The primary participants in the Deaf-Blind Project were Dr. Joyce Mitchell (Medical Informatics), Dr. Sandra Davenport (Genetics and Developmental Pediatrics), Dr. James Thelin (Audiology), and Meg Hefner (Genetics). Their tireless and pioneering work […]
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