The mission of the CHARGE Syndrome Foundation: We lead and partner to improve the lives of people with CHARGE syndrome locally, nationally, and internationally through outreach, education, and research. Provide a broad network of support to individuals, families and professionals Engage in knowledge acquisition, development and dissemination Promote innovative scientific and clinical advancements Champion the […]
The journey of the CHARGE Syndrome Foundation began in 1982, in Columbia, Missouri, with the Deaf-Blind Project in the Division of Genetics, University of Missouri. A group of dedicated professionals got to work putting together valuable informational materials for families and parents who were dealing with the challenge of caring for their children with CHARGE […]
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