The CHARGE Syndrome Foundation is run almost entirely by volunteers – parents and professionals who dedicate their time to running the Foundation, supporting families, organizing biennial conferences, and even doing things like building this website. This allows the Foundation to invest 90% of funds raised into directly supporting the cause. The Foundation recognizes those who […]
The mission of the CHARGE Syndrome Foundation: We lead and partner to improve the lives of people with CHARGE syndrome locally, nationally, and internationally through outreach, education, and research. Provide a broad network of support to individuals, families and professionals Engage in knowledge acquisition, development and dissemination Promote innovative scientific and clinical advancements Champion the […]
Meet our two employees, Jackie Alshawabkeh and Sheri Stanger. Director of Outreach Sheri Stanger is our Director of Outreach and spends many hours supporting families in a variety of ways. Development & Database Manager Jackie Alshawabkeh is our Development & Database Manager and assists with many different Foundation projects.
The journey of the CHARGE Syndrome Foundation began in 1982, in Columbia, Missouri, with the Deaf-Blind Project in the Division of Genetics, University of Missouri. A group of dedicated professionals got to work putting together valuable informational materials for families and parents who were dealing with the challenge of caring for their children with CHARGE […]
It all began in 1982 with a Deaf-Blind Project in the Division of Genetics, Department of Child Health, University of Missouri, Columbia. The primary participants in the Deaf-Blind Project were Dr. Joyce Mitchell (Medical Informatics), Dr. Sandra Davenport (Genetics and Developmental Pediatrics), Dr. James Thelin (Audiology), and Meg Hefner (Genetics). Their tireless and pioneering work […]
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We hope you are enjoying the new website. It is our goal to make navigation and availability of resources as user-friendly as possible. If you need help finding a resource or have a suggestion, please let us know at info@chargesyndrome.org.