Posts Tagged ‘foundation’

Awards and Recognition

The CHARGE Syndrome Foundation was built by volunteers — parents, professionals, and community members who dedicate their time to supporting families, organizing biennial conferences, raising awareness, and much more. While we now have a small team of paid staff who help carry out the Foundation’s important work, the spirit of these awards remains focused on recognizing […]

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Our Mission

The mission of the CHARGE Syndrome Foundation: We lead and partner to improve the lives of people with CHARGE syndrome locally, nationally, and internationally through outreach, education, and research. Provide a broad network of support to individuals, families and professionals Engage in knowledge acquisition, development and dissemination Promote innovative scientific and clinical advancements Champion the […]

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Our Staff

Executive Director Lisa Cunningham Kansas Outreach and Engagement Manager Lourdes E. Quintana Baez, MS, ITDS Florida Marketing and Communications Manager Torrie Rathjen New Jersey

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About the Foundation

The CHARGE Syndrome Foundation, Inc. is a 501(c)(3) charitable organization that is governed by a Board of volunteers composed of up to 12 members. The primary goals of the Foundation include: growing our outreach and support programs; increasing our knowledge base; promoting awareness; building networks and partnerships; and investing in leading-edge research. Join Our Team! […]

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Foundation History

It all began in 1982 with a Deaf-Blind Project in the Division of Genetics, Department of Child Health, University of Missouri, Columbia. The primary participants in the Deaf-Blind Project were Dr. Joyce Mitchell (Medical Informatics), Dr. Sandra Davenport (Genetics and Developmental Pediatrics), Dr. James Thelin (Audiology), and Meg Hefner (Genetics). Their tireless and pioneering work […]

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