Posts Tagged ‘families’

Opportunities for Families

 PARTICIPATE IN RESEARCH TAKING PLACE AT 14TH INTERNATIONAL CHARGE SYNDROME CONFERENCE Be sure to check out the Research Table during conference registration in Dallas.  There will be more information on each project as well as sign up sheets.  Many projects will allow walk-ups as well.  Check out these 10 projects and see which ones you […]

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Medical Features

Every individual with CHARGE is unique, each with his or her own collection of medical challenges. Spending time in hospital is a fact of life for many children with CHARGE. Multiple surgeries are very common. CHARGE syndrome is complex and your child will likely see many specialists, not all of whom will be familiar with […]

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For Families

You found this page because you need information about CHARGE syndrome. You might have a new baby, a toddler or an older child who has just been diagnosed with CHARGE; you might be an adult who is beginning to realize that your constellation of vision, hearing, and health issues might be CHARGE syndrome; or you […]

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