Posts Tagged ‘families’

Opportunities for Families

Dr. Timothy Hartshorne and Anna Weatherly (doctoral student) from the CMU CHARGE Syndrome Research lab are investigating what the experience of fatigue is like for adolescents and adults with CHARGE syndrome.  For this part of the study, they are seeking to examine the severity with which individuals with CHARGE syndrome experience fatigue symptoms compared to […]

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Medical Features

Every individual with CHARGE is unique, each with his or her own collection of medical challenges. Spending time in hospital is a fact of life for many children with CHARGE. Multiple surgeries are very common. CHARGE syndrome is complex and your child will likely see many specialists, not all of whom will be familiar with […]

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For Families

You found this page because you need information about CHARGE syndrome. You might have a new baby, a toddler or an older child who has just been diagnosed with CHARGE; you might be an adult who is beginning to realize that your constellation of vision, hearing, and health issues might be CHARGE syndrome; or you […]

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