Posts Tagged ‘families’

Opportunities for Families

Parents of children ages 3 to 12 years with and without CHARGE Syndrome needed for Research Study. This study will examine associations between the environment and parents perceived motor and teaching competence in children with CHARGE Syndrome To read more about this study: click here. For more information and the link to participate, please contact […]

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Medical Features

Every individual with CHARGE is unique, each with his or her own collection of medical challenges. Spending time in hospital is a fact of life for many children with CHARGE. Multiple surgeries are very common. CHARGE syndrome is complex and your child will likely see many specialists, not all of whom will be familiar with […]

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For Families

You found this page because you need information about CHARGE syndrome. You might have a new baby, a toddler or an older child who has just been diagnosed with CHARGE; you might be an adult who is beginning to realize that your constellation of vision, hearing, and health issues might be CHARGE syndrome; or you […]

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