Posts Tagged ‘families’

Opportunities for Families

You are invited to participate in a study about the educational experiences of individuals with CHARGE syndrome being conducted by the CHARGE Syndrome Research Lab at Central Michigan University.  The purpose of this project is to better understand the educational experiences of school-age individuals with CHARGE syndrome, including special education eligibility, placement, educational services, and […]

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Medical Features

Every individual with CHARGE is unique, each with his or her own collection of medical challenges. Spending time in hospital is a fact of life for many children with CHARGE. Multiple surgeries are very common. CHARGE syndrome is complex and your child will likely see many specialists, not all of whom will be familiar with […]

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For Families

You found this page because you need information about CHARGE syndrome. You might have a new baby, a toddler or an older child who has just been diagnosed with CHARGE; you might be an adult who is beginning to realize that your constellation of vision, hearing, and health issues might be CHARGE syndrome; or you […]

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