Posts Tagged ‘families’

Opportunities for Families

HOW TO PARTICIPATE IN CHARGE SYNDROME RESEARCH CHARGE research could not take place without the participation of the families. There are many ways you can help. At any given time, there are many studies underway all over the world to help further understand many aspects of CHARGE and CHD7. Studies range from DNA analysis to […]

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Medical Features

Every individual with CHARGE is unique, each with his or her own collection of medical challenges. Spending time in hospital is a fact of life for many children with CHARGE. Multiple surgeries are very common. CHARGE syndrome is complex and your child will likely see many specialists, not all of whom will be familiar with […]

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For Families

You found this page because you need information about CHARGE syndrome. You might have a new baby, a toddler or an older child who has just been diagnosed with CHARGE; you might be an adult who is beginning to realize that your constellation of vision, hearing, and health issues might be CHARGE syndrome; or you […]

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