Posts Tagged ‘clinical’

Professional Advisory Board

The Professional Advisory Board (PAB) advises the Foundation on the identification, funding, and development of high-quality research projects related to CHARGE syndrome. The PAB consists of professionals from a variety of disciplines who have extensive research experience in clinical, scientific, and medical issues.   Donna Martin, MD, PhD Chair – CHARGE Syndrome Foundation Professional Advisory Board Chair, Michigan Medicine Department of […]

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Clinical Database Project

The CHARGE Syndrome Clinical Database Project (CSCDP) is an internet web-based questionnaire designed to collect clinical data on individuals with CHARGE syndrome (CS). Our aims are to: collect information on people with CS of all ages from all over the world, use the collected data to understand more about CS and how it affects different […]

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Foundation Supported Research

The CHARGE Syndrome Foundation is dedicated to promoting high quality clinical and scientific research into the cause and treatment of CHARGE syndrome. We have come a long way over the past couple of years, but know there is way more to be done.  CHARGE Syndrome Foundation Scientific Research Grant Program The CHARGE Syndrome Foundation, Inc. […]

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