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Support Groups

CHARGE Syndrome Foundation Parent to Parent Resources

If you are interested in finding someone in your area please contact the foundation at 800-442-7604 or by sending an email to info@chargesyndrome.org for a list of families.

CHARGE Family Support Groups – US-based
CHARGE Syndrome Foundation Facebook Group

CHARGE Syndrome Foundation Facebook Page

Fundación del Síndrome de CHARGE- Grupo De Apoyo

Western Region Parent-to-Parent Support Group
Click here to register

Birth to 3 Years Parent to Parent Support Group
Click here to register

Texas CHARGE Group
A group of Texas families, friends, and professionals who are dedicated to helping children and young adults who live with Charge syndrome.

CHARGE Network through Deafblind International

CHARGE Family Support Groups – Worldwide

Australia – CHARGE Syndrome Association of Australasia Ltd
The CHARGE Syndrome Association of Australasia is a not-for-profit organization committed to improving the health and welfare of children and adults with CHARGE Syndrome. The Association supports families in Australia and New Zealand to enable children and adults with CHARGE Syndrome to reach their full potential.

Belgium – Belgian CHARGE Syndrome Website
Information by and for parents of children with CHARGE syndrome.

Germany – CHARGE Syndrome German
This is a non-profit self-help group in support of individuals with CHARGE and their families in German speaking countries (Germany, Austria, Switzerland, etc.).

France – Association CHARGE
French support group, formed in 1996 by parents.

Netherlands – Dutch CHARGE Syndrome Network
This site is the source of information about CHARGE based in the Netherlands. It is a site by and for parents of children with the syndrome, for schools, professionals and other interested parties.

Spain – Asociación Españoña Síndrome de Charge
Family support group based in Spain

United Kingdom
UK FB page

The CHARGE Family Support Group UK
UK family support group that has been in existence since 1987.