Early childhood is a time of great stress for a parent of a child with CHARGE syndrome. There are medical issues, surgeries, therapies, the Early Intervention and Special Education systems, sensory issues, and concerns about overall development. You will sometimes wonder how to fit everything into your day. We hope that this page will provide […]
Transition to Adulthood Planning for adulthood is an exciting time in a young person’s life. When that young person has CHARGE syndrome, extra care and thought must go into the process as families move from entitlement based services to eligibility based services. Planning is crucial to obtain the necessary supports for independent living, employment, medical […]
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