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30th Anniversary – A Message from our Executive Director

A new year brings new beginnings, fresh perspectives, and ambitious resolutions. Personally, I’ve resolved to maintain my various inboxes better, cleaning out the embarrassingly large number of emails I’ve collected over the past few years by deleting the trivial and archiving the important. Ironically, it’s forced me to spend far more time in the past than I typically indulge in as I launch into a new year. But this time spent is no less valuable, as I reflect and wonder how in the world I got on so many mailing lists.

As we kick off our 30th Anniversary year, we’re spending lots of time reflecting at the Foundation, too. What was started in 1993 by a small group of professionals who saw a significant need for information and understanding about a rare and confusing (then) condition has evolved into an internationally known and respected Foundation that supports thousands of individuals with CHARGE, their families and the professionals who serve them every year. The best part of this anniversary is we get to celebrate with all of you at our 15th International Conference in just 188 days! We’ll party like it’s 1993…honoring how far the Foundation, medical and clinical advancements, and best of all, YOU have come.

There is still more we want to accomplish in the coming days, months, and years. We’re excited to take you all along for the ride as we work to make the world a better place for every individual with CHARGE syndrome.

Cheers to our 30th!

Lisa Cunningham
Executive Director

CHARGE Syndrome Foundation – Then and Now  Click to see how far the Foundation has come in the past 30 years!