CHARGE Syndrome Foundation - Resources - Management Manual - Future Versions

2009 CHARGE Conference:

Join us for the 2009 conference at the Indian Lakes Resort in Chicago, Illinois.

Get info about our past conferences.

CHARGE Syndrome Foundation Video

View a video about the foundation.

Future Versions

Below is a list of some of the things we hope to cover eventually in the CHARGE manual.

Missing Medical Issues

Balance
Immune System
Dental

Behavior

Special considerations: autistic behaviors; OCD?
Mannerism
Medications
Establishing Relationships and Social Skills
Personality
Learning Styles

Transitions (School, Beyond High School)

Educational Issues

1. You Know More Than You Think You Do!
- a. Don't be cowed by the medical problems
- b. Establish the communication bubble
- c. Listen to the parents
- d. Establish priorities with the team
  - (1) Set up routines
  - (2) Build in anticipation, motivation

Additional Resources

If you have additional suggestions, please pass them on to us at the Foundation.

Thanks
Meg Hefner