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9th International CHARGE Syndrome Conference

 

Professional Program

These are the tentatively scheduled presentations and presenters as of March 16, 2009.  The presentations are placed into categories based on their content.  The code in the middle will tell you under which category the presentation falls.  The codes and categories are as follows:

ED - education, development, behavior 

MG - medical, genetic

FS - family support

NF - new family information

SE - sensory

TA - transition-to-adulthood

TX - therapies

 

 Presentation

 Code

 Presenters

Parental attitudes toward the use of neuromuscular electrical stimulation (NMES) for the treatment of dysphagia in CHARGE syndrome: a pilot study

 TX, FS

 N. Anderson, S. Herrick, M. Follstaedt, J. Barker, A. Hamilton 
Smell and puberty in CHARGE syndrome: can a smell test predict whether spontaneous puberty will occur?

 SE

 J. Bergman, C. van Ravenswaaij-Arts
Cause of death in CHARGE syndrome after the neonatal period: a report of six cases

 GI

 J. Bergman, K. Blake, R. Free, C. van Ravenswaaij-Arts
Anesthetic management of individuals wtih CHARGE syndrome

 MG

 K. Blake, J. MacCuspie
Botox for dysphagia in CHARGE syndrome: case study

 TX

 K. Blake, J. MacCuspie
Vision Issues for people with CHARGE syndrome

 SE

 D. Brown
CHARGE feet: fact or fiction

 MG

 M. Girardi
Non-CHARGE multiple congenital anomaly syndromes associated with choanal atresia

 MG

 B. Hall
Person-centered planning as an adjunct to evaluation of behavior and academic ability in CHARGE syndrome: getting professionals on the same page

 ED

 N. Salem-Hartshorne
Progress on a behavioral phenotype for CHARGE syndrome-update on research related to behavior in CHARGE

 ED

 T. Hartshorne
Constructing Meaningful Conversations

 ED

 D. Haynes
Communicative rate, forms, and functions in CHARGE syndrome

 ED

 E. King, L. Swanson, N. Steele, S. Thelin, J. Thelin
New data on growth, growth hormone therapy, neonatal problems and puberty

 MG, TX

 J. Kirk 
Vestibulo- and cervico-ocular reflex in CHARGE syndrome: Data from the 2007 CHARGE conference

 SE

 S. Krivenki, J. Thelin 
Forms of employment - including customized employment

 TA

 J. McNulty, M. Fagbemi
The NICU Experience: its impact and implications

ED, MG

 B. Purvis 
Insights into the function of CHD7 revealed through genomics

 MG

 P. Scacheri
Preparation/certification of professionals in the area of deafblindness

 ED

 A. Zambone, S. Bashinski, M. Darrow-Engleman

* NOTE: Additional presentations to be added

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