CHARGE Syndrome Foundation

The Foundation - Board Profile

My name is Lisa Weir and I live in Saint John, New Brunswick, Canada with my husband Graeme, sons Ryan and Kyle, and daughter Kennedy. I became involved with the world of CHARGE syndrome when Kennedy was born and diagnosed with it in 1998. Since that time, I have been involved in a number of CHARGE-related projects in Canada and have been moderating the CHARGE Syndrome Listserv since 1999. I am currently working for the Atlantic Provinces Special Education Authority (APSEA) as an itinerant teacher for students who are deaf or hard of hearing.

In March of 2007, it was my pleasure to join the Board for the CHARGE Syndrome Foundation as its first international director, and the Executive Committee in June, 2007 as secretary. In July, 2009, I switched roles on the Executive Committee to Vice President. As chairperson for the Communications Committee, I will be maintaining the Foundation web site as well as other online projects, overseeing the publishing of the online CHARGE Accounts newsletter and looking after any other public awareness or communications issues that arise.

If you have any questions, or are interested in being part of the Communications Committee, please contact me.