2009 CHARGE Conference:

Get information on the CHARGE Conference 2009 Join us for the 2009 conference at the Indian Lakes Resort in Chicago, Illinois.

Get info about our past conferences.


CHARGE Syndrome Foundation Video

CHARGE Foundation Video View a video about the foundation.


The Foundation - Board Profile

Lacey Friedman & Lucas

My name is Lacey Friedman, I am from California and have one amazing 5-year-old little boy named Lucas.   Like many children with CHARGE the first couple of years were very difficult, in fact the last few months of pregnancy were also difficult, with many fetal tests performed to determine the extent of Luke’s problems.  After almost 4 months at Stanford’s Packard Children’s Hospital Lucas came home.  Lucas has had 9 surgeries to date, including two open heart, two cochlear implant and recently, a G-tube closure! I am in awe of everything Lucas does!  He is tough, funny and the light of my life. 

 I joined the CHARGE Syndrome Board of Directors because I realized that Luke’s good health was providing me with a little extra time and how better to spend that time, than helping others whose children were still medically fragile.  I know that having CHARGE or being a parent of a child with CHARGE is not an easy road, but by helping each other, the journey can be much smoother!