Upcoming Events

CHARGE Research

Clinical Database Project


How To Give

Donate Button

Make a tax-deductible contribution to the CHARGE Syndrome Foundation using a major credit card.

If you prefer to mail your contribution, use this form.



A Better World for People with CHARGE Syndrome

Calling All Volunteers!

We are always looking for volunteers to assist us with projects here at the Foundation.  To that end, we have developed a volunteer form that interested individuals can complete. Your information will then be kept on file with the volunteer management committee so it can be accessed for various projects as they come up.  If you have some time to spare and want to get involved in helping us make this a better world for people with CHARGE syndrome, check out the link below and send us your information!

Donations & Fundraising

Help the Foundation by making a tax-deductible contribution to the CHARGE Syndrome Foundation.  Click the donate online button below to donate using a major credit card. If you prefer to mail your contribution, use this form.

Or consider holding a fundraiser to raise money for the Foundation. Click here for a list of several ways to put the FUN in fundraising.

Connect with Us

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Provider Database

We are developing a provider list of specialists and are seeking information on physicians, therapists and other service providers who have been helpful to your family and are knowledgeable about CHARGE Syndrome. 

Please submit provider information using the link below.  Thank you!


It's Charge It for CHARGE time! With a few minutes of your time, you can use email and/or social media to help the Foundation with  its 6th annual Charge It for CHARGE campaign.  Help us help families by clicking the link below for more information and starting your campaign today!

Three Decades

David Brown has been working with individuals with CHARGE syndrome for more than 30 years.  He cites the Foundation as being a crucial part of his work and discusses the importance of membership in this short article.  Please take a moment and join us in our quest to make the world a better place for people with CHARGE syndrome.

Read our PDF newsletter - CHARGE Accounts


CHARGE Syndrome FAQ 

Who, what, when, where, why...some of the most commonly asked questions about CHARGE Syndrome are answered in this FAQ document. You can also view a CHARGE Syndrome fact sheet.


The CHARGE Syndrome Foundation is a 501(c)(3) charitable organization.  All donations are tax deductible to the extent allowed by law.  Your donations help fund research, publications, educational programs, the biennial conference and family outreach.  For more information, please contact our fundraising committee.

Foundation Fundraiser

Learn more about our special Charge It for CHARGE Fundraiser. You can donate or become a fundraiser to help!

Charge It for CHARGE campaign button




New Parents Click Here Button


International CHARGE
Syndrome Conference

We had a great turn out in Scottsdale, AZ for the International CHARGE Syndrome Conference. Watch a video on the conference highlights and buy a DVD if you are interested in the full-length highlights.

We look forward to seeing you July 23, 2015 in Chicago, IL for our next conference!



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