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Make a tax-deductible contribution to the CHARGE Syndrome Foundation using a major credit card.

If you prefer to mail your contribution, use this form.



A Better World for People with CHARGE Syndrome

12th International CHARGE Syndrome Conference Photos

Our professional photographers Sandy & Janet Buller, who generously volunteered their time, were very busy throughout the entire conference.  Stay tuned to our 2015 conference page for some great photos and details on how to get copies of all of the conference photos. 


Sandra Davenport CHARGE Syndrome Fellows Program

The 2015 Davenport Fellows: Sara Espanet, Caitlin Hale, Alexandra Hudson, Ben Kennert, Rachel Malta, Neeraja Reddy, Hailey Ripple, Lauren Siems and Ethan Sperry.

2015 Davenport Fellows

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Ethan Wolfe Recreational Assistance Program

David Wolfe presented the first recipients of the Ethan Wolfe Recreational Assistance Program at conference.  You can see pictures of Mark, Hannah, Ryder, Landon, Jon, Samuel, Antonio and Cody and read about programs or equipment for which they applied and received funding through this Foundation program.

CHARGE Syndrome Research

The Foundation is trying to foster more CHARGE research around the world.  In addition to funding an increasing number of projects, the CHARGE Syndrome Foundation is working in partnership with Saint Louis University to create the CHARGE Syndrome Clinical Database Project (CSCDP).  To help researchers obtain data on CHARGE syndrome, please participate in this web-based questionnaire.


2015 Pilot Grant Recipients

We are very pleased to announce the recipients of the 2015 Foundation Pilot Grants: Philip Gage, PhD (University of Michigan), Faith Liebl, PhD (Southern Illinois University),  Kathrin Schmeisser, PhD (Université de Montréal) and Kai Jiao, MD, PhD (University of Alabama at Birmingham)

Read more about their projects here:

Read our PDF newsletter - CHARGE Accounts

CHARGE Syndrome FAQ 

Who, what, when, where, why...some of the most commonly asked questions about CHARGE Syndrome are answered in this FAQ document. You can also view a CHARGE Syndrome fact sheet.


The CHARGE Syndrome Foundation is a 501(c)(3) charitable organization.  All donations are tax deductible to the extent allowed by law.  Your donations help fund research, publications, educational programs, the biennial conference and family outreach.  For more information, please contact our fundraising committee.

Foundation Fundraiser

Learn more about our special Charge It for CHARGE Fundraiser. You can donate or become a fundraiser to help!

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13th International

CHARGE Syndrome Conference

Rosen Shingle Creek hotel

The 13th International CHARGE Syndrome Conference will take place July 27-30, 2017 at the Rosen Shingle Creek Hotel in Orlando, Florida. 


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