Home > Get Involved > More Ways to Help > Clinical Database Project

Clinical Database Project

databaseThe CHARGE Syndrome Clinical Database Project (CSCDP) is an internet web-based questionnaire designed to collect clinical data on individuals with CHARGE syndrome (CS). Our aims are to: collect information on people with CS of all ages from all over the world, use the collected data to understand more about CS and how it affects different individuals, and assist CS research by identifying people with specific issues and simplify participation in additional research studies.

To participate, please see the official Information Flyer and take a look at the Recruitment & Consent and HIPAA Privacy Documents. You will need to agree to all of this information to participate.

For more information, visit the Understanding the Survey Sections and FAQ.