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Upcoming Events

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CHARGE : A syndrome of sensory deficits and the psychosocial implications for children and families.
To be presented by Meg Hefner at the National Society of Genetic Counselors Annual Education Conference. Janus III October 1, 2016

This is part of the Janus Series at the 2016 NSGC AEC in Seattle, Washington. With nearly 2000 genetic counselors expected to attend this meeting, it provides a wonderful forum to update genetic counselors on the current diagnostic criteria and educate them about the influences of sensory deficits on development and education for children with CHARGE. http://nsgc.org/2016aec 


Cincinnati Children’s Hospital CHARGE Conference
Cincinnati Children’s Hospital, October 14, 2016 with clinic on October 15

The inaugural Cincinnati Children’s CHARGE Syndrome Conference seeks to bring together families, individuals, and clinicians engaged with children with CHARGE Syndrome in order to collectively advance the care, support and understanding of children affected by CHARGE Syndrome.

Topic areas for this one day symposium will cover very common conditions, challenges, and questions that were identified by surveys and conversations from the 2015 CHARGE Syndrome Foundation Meeting in Chicago last summer. Speakers include Meg Hefner, David Brown, and several members of the Cincinnati CHARGE Clinic team. Participants in this conference will include medical professionals, educators, early interventionists, families, and individuals with CHARGE.


CHD7 and Chromatin Remodeling – 2nd Biennial Conference
University of Michigan, Palmer Commons, Ann Arbor, November 7, 2017

This conference brings together many of the premier researchers interested in CHD7 and chromatin remodeling. The goal of the meeting is to provide a forum for presentation of new research and findings related to CHARGE, CHD7, and related genes and proteins and their roles in development and disease. Meeting organizers are Dr. Donna Marting and Dr. Shigkei Iwase. For more information, contact Dr. Martin donnamm@med.umich.edu