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Every two years the CHARGE Syndrome Foundation hosts the largest gathering in the world of individuals with CHARGE syndrome and their families. The conference is also attended by dedicated professionals who make themselves available to families throughout the weekend.

13th International CHARGE Syndrome Conference

We are thrilled to announce the date and location for the
13th Annual CHARGE Syndrome Conference –
Taking CHARGE in Orlando!


Date: July 27-30, 2017
Location: Rosen Shingle Creek Hotel  (use this link to book your hotel rooms to ensure you get the Foundation conference rate)

Rosen Shingle Creek is conveniently located on Universal Boulevard, minutes away from many world-famous attractions. Begin planning now to join us for an amazing conference and maybe even stay for a holiday!

New this year: Participate for Prizes and Free Conference Registration!

Thanks to the generosity and fundraising efforts of all of our participants, their friends, families and colleagues, we raised approximately $800,000 over the past 8 years to support the mission and programming of the Foundation. We invested in more research, outreach, advocacy, conferences and direct assistance to our families.

Our work is far from done. We need everyone’s participation to be able to offer our families, professionals, volunteers, and researchers the support they need! We also want all of our families to be able to join us as we Take CHARGE in Orlando next year. So this year we are rolling out a new and exciting incentive* program.


This incentive* will run from October 1, 2016 until June 1, 2017. Anyone who is a Charge It for CHARGE participant of a team will qualify for the incentive based on their individual fundraising efforts.

More information coming soon. Stay tuned!

Don’t miss a single detail – ensure you are receiving foundation emails by eNews. Conference registration will be available early in 2017.

Explore past conference handouts:

CHARGE 2009    CHARGE 2011     CHARGE 2013      Print