CHARGE Syndrome Foundation - Upcoming Events

Upcoming Events

11th International CHARGE Syndrome Conference

Host: CHARGE Syndrome Foundation

Date: July 25-28, 2013

Location: Fairmont Scottsdale Princess

Scottsdale, Arizona

For more information on this event, please stay tuned to www.chargesyndrome.org

Parent Webinar: Pain in CHARGE with Dr. Timothy Hartshorne and Dr. Kasee Stratton

Host: CHARGE Syndrome Foundation

Date: February 12, 2012, 7pm EST

Dr. Timothy Hartshorne and Dr. Kasee Stratton discussing
sources of pain in persons with CHARGE syndrome. Their presentation will explain how pain
may influence behavior and how to assess pain in those who are unable to label or talk about
their pain.

Information on webinar registration will be sent out to parents who are current members of
the Foundation in early January.

Parent Webinar: David Brown - The Forgotten Senses

Host: CHARGE Syndrome Foundation

Date: May 20, 2012, 7pm EST

David's presentation will provide simple explanations of these two senses, how they work, the
purposes they serve, and how important they are to child development.
Information on webinar registration will be sent out to parents who are current members of
the Foundation in early January.

AFB Scholarships

American Foundation for the Blind offers 7 scholarships for up to 11 students who are legally blind. For more information and to fill out the scholarship form, please visit http://www.afb.org/scholarships.asp. For any other questions or any other additional information, please contact

AFB Information Center
Telephone: (304) 523-8651
Toll Free: (800) 232-5463

Deadline: April 30, 2012

CHARGE'd-Up for Golf on Memorial Day

Save the Date: May 28, 2012

3rd Southeast Regional Weekend for Families and Professionals

Date: July 13th & 14th 2012

Location: Franklin Marriott Cool Springs, TN
For more information, pPlease contact Jennifer Miller: 615-322-7194 or Jennifer.L.Miller@vanderbilt.edu

4th Annual Joshua Kurby Charge for CHARGE 5K

Save the Date: Saturday, August 18, 2012

Location: Due to some construction at Armstrong Park, there will be a new venue: St. James Farm in Warrenville, right off of Butterfield Rd.
The registration form will be available in the next couple of months as well as online registration - stay tuned!

Two Steppin’ for CHARGE Syndrome

Date: Every Friday and Saturday night

Raising money as well as bringing awareness to people who have never heard of CHARGE syndrome. 100% of the proceeds go to CHARGE Syndrome Foundation, Inc.

Location: KP’s Music Rodeo 1276 State Route 183, Troy Tennessee 38260

For more information or to make a donation, please contact Kirk Morris or Kelly Berry at 731-536-5678, visit www.facebook.com/kpsmusicrodeo or email kpsmusicrodeo@att.net

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Disclaimer: The CHARGE Syndrome Foundation does not endorse any events listed unless otherwise stated. The events posted are those the Foundation feels may be of interest to its members.