2009 CHARGE Conference:

Get information on the CHARGE Conference 2009 Join us for the 2009 conference at the Indian Lakes Resort in Chicago, Illinois.

Get info about our past conferences.


CHARGE Syndrome Foundation Video

CHARGE Foundation Video View a video about the foundation.


2007 "Tentative" Schedule

(This schedule may change between now and the conference)


Thursday:

10:00 - 6:00      Registration
2:00 - 6:00        Professional Board Meeting (conference presenters & invited guests)
7:00 - 10:00      Opening reception for everyone. (snacks and soft drinks provided)

 

Friday:

7:00 - 4:00        Registration
7:00 - 9:00        Breakfast
7:30 - 8:30        Beach Club registration
8:00 - 11:45      Morning session of Beach Club
9:00 - 9:45        Opening general session (President, Neal Stanger)
9:45 - 10:05      General Session Keynote-- Siblings, Too important to ignore (Tina Prochaska)
10:05 - 10:30    Break
10:30 - 11:45    Breakout session #1
                                      Language development (Lori Swanson, Nancy Steele, Wendy Keedy)
                                      Clinical and genetic evaluation of children with CHARGE syndrome, 
                                                       the Baylor University study (Seema Lalani) 
                                      Emotional competence (David Brown)
                                      Grandparents meeting (facilitator: Nancy Hartshorne)
                                      Father's Forum (facilitator: Tim Hartshorne)
11:45 - 1:00      Lunch
12:30 - 5:00      Afternoon session of beach club open
12:15 - 3:45      Sib Shop # 1--pre registration required (Tina Prochaska, Carol Robbins)
1:00 - 2:15        Breakout session # 2 
                                      Cracker barrel session on cochlear implants (Kat Stremel, et al.)
                                      Transition-to-Adulthood: resources (Betsy McGinnity); Sexuality in CHARGE
                                                       syndrome (Maurice Belote) 
                                      CHARGE 101 for New Families: diagnosis, anesthesia, etc. (Meg Hefner, 
                                                       Kim Blake)
2:15 - 2:30        Break
2:30 - 3:45        Breakout session # 3 
                                      Strategic conflict management skills in special education settings (John
                                                       Reiman)
                                      Familial CHARGE syndrome-- Recurrence risk ? (Conny van Ravenswaaij,
                                                       Jorieke Bergman) & Puberty and Smell (Jorieke Berman)
                                      Transition to adulthood Part 2 (Joe McNulty, Kathy McNulty)
                                      CHARGE 102 for New Families: feeding, development. (Sandra Davenport,
                                                       Kim Blake, Rob Last)
3:45 - 4:15        Break
4:15 - 5:30        Breakout session # 4 
                                      Panel on psychotropic medicines (Tim Hartshorne, Lee Wachtel)
                                      Homeschooling (Shirley Minster)
                                      Transition to adulthood Part 3 (Susan Rezinski, Philip Wismer)
                                      CHARGE 103 New Families; communication, transition to school, (Sandra
                                                       Davenport, Kim Blake, Rob Last)
                                       Fundraising Training
6:00 -                Dinner meeting of adults with CHARGE syndrome (Facilitators: Pam Ryan, 
                                                        Meg Hefner)
Evening           Conference participants are on their own for dinner  

Saturday:

7:00 - 4:00        Registration is open
7:00 - 9:00        Breakfast
8:00 - 11:45      Morning session of Beach Club
8:45 - 12:00      Sib Shop # 2--pre registration required (Tina Prochaska, Carol Robbins)
9:00 - 9:55        General membership meeting; Updates & Awards (President,  Neal Stanger)
9:55 - 10:20      General Session Keynote -- Learning From Each Other (Joe McNulty)
10:20 - 10:35    Break
10:35 - 11:45    Breakout session #5
                                      Vestibular function, balance, and development (Lori Travis, Jim Thelin)
                                      Strategic conflict management processes in special education settings: 
                                                       IEP facilitations, resolution meetings, & mediation (John Reiman)
                                      The behavioral phenotype in CHARGE syndrome (Tim Hartshorne)
11:45 - 1:00      Lunch
12:30 - 5:00      Afternoon session of beach club open
12:30 - 3:45      Sib Shop #3--pre registration required (Tina Prochaska, Carol Robbins)
1:00 - 2:00        Breakout session # 6 
                                      Puberty & growth--including response to growth hormone (Jeremy Kirk) 
                                      Panel discussion on education & learning (Martha Majors, Sharon Stelzer)
                                      Creating a community for adult living (Jackie Kenley, Nancy Cornelius)
2:00 - 2:15        Break
2:15 - 4:45        Posters, Professionals & Exhibits
2:15 - 3:15        Breakout session # 7 
                                      Posters, Professionals & Exhibits
                                      Person centered planning (Nancy Steele, Donna Consacro, Susan Hiscutt)
                                      Pain issues in CHARGE syndrome (Veronica Bernstein)
3:15 - 3:45        Break
3:45 - 4:45        Breakout session # 8 
                                      Posters, Professionals & Exhibits
                                      Neurodevelopemental perspective: learning & behavior (Kim Lauger)
                                      The whole child: going beyond the IEP & IFSP (Donna Lynne, Kim Zeigler)
6:00 -9:30        CARNIVAL -- DINNER -- SILENT AUCTION -- DANCING !!!!!!!                                      
                                       

Sunday:

7:00 - 9:00        Breakfast
8:00 - 12:00      Beach Club
9:00 - 9:10        Opening general session 
9:10 - 10:10      California Dreaming -- Individuals with CHARGE syndrome answer
                            questions that were previously submitted (Facilitators Pam Ryan, Meg Hefner)
10:10 - 10:35    Break
10:35 - 11:45    Speakers & Professionals answer questions
11:45  - 12:00   Farewell & 2009 conference information

 
Be sure to check the program book and listen to announcements for last minute
changes and updates